Insert your LINk link now – the NHS is on Facebook

The lead article in the HSJ of 18th August looked at how NHS organisations are using this Web 2.0 social networking site to connect with patients, staff, Government ministers and the public.

Some are using it to tell people more about the personal side of their lives. We are told that the Health Secretary Alan Johnson

“is taking his excellent staff out for a very liquid lunch”.

Hmm – rather inviting comments from the alcohol units police but we get the point – Government ministers are human and have humans working for them.

Andrew Duggan of the Countess of Chester Hospital Foundation Trust wants to use Facebook to engage with young people and is quoted as saying that

“an important objective for us at the moment is engaging with younger people; our staff, patients and (foundation trust) members of the future”.

He acknowledges the fact that this group is traditionally difficult to engage with.

This is the sort of challenge that local involvement networks (LINks) have to meet as well. The younger people are – as the phrase goes – ‘digital natives’ as opposed to digital immigrants i.e. anyone who has not grown up in the digital age. They are most comfortable working in the sort of e-environment that Facebook and others of that ilk e.g. My Space and Bebo provide.

The challenge of course is not so much the technology. It is easy to set up what Facebook calls ‘pages’ where companies and organisations can post news and promotional messages for fans who have signed up to the page. Quantities of said fans are then supposed to post their reactions to the content. The difficulty lies in coming up with the hook that gets users signed up, interested and posting. Remember the internet phenomenon ‘the lurker’ – those who observe silently but never join in? I shall ask the MAC instant family-based research panel of digital natives – some pictured below and ranging in age from 5 to 26 – what would get them interested in a NHS site? We will report back.

 

It sounds interesting and fun and one for the Wandsworth LINk to take on board at once. Watch their space.

August Newsletter – Health without frontiers and devolved responsibilities

A mixed range of opinions posted in July and early August. I offered the NHS a new rock anthem ‘Turn Me Loose and Set Me Free’ to celebrate as the NHS moves from targets to devolved responsibilities under the new Constitution. David Nicholson the NHS Chief Executive told patient and user representatives to ’cause more trouble’.

Andrew Craig delved into the EU directive on health without frontiers with a reminiscence about handling a complaint for reimbursing a patient who saved her hearing by going off to France for an operation which the NHS kept promising but never delivered. He concluded that health travel would broaden the minds of British patients and vice versa. And acute trusts here looking to keep up their balance sheets would do well to consider where the waiting lists were longest in member states as health travel will work both ways. Fleishman-Hillards’ blog “Public Affairs 2.0” picked this up and gave it pride of place in its review of blogosphere opinions about the directive.

Two blog pieces also looked at activity outside the UK with the first written from Canada on current obsessions with detached body parts and how Canada’s best selling newspaper approached reader representation. The other looks at the way one Ontario hospital does its follow-up questionnaires for in-patients 4 weeks or so after they have gone home.

Closer to home, MAC’s Caroline Millar and Rebecca Macnair went on the day of the NHS 60th birthday to the parliamentary launch of the motor neurone disease year of care pathway commissioning tool. This culmination of two years work with the MND Association was praised by Baroness Finlay, professor of palliative care at Cardiff University, as “one of the most important pieces of helpful documentation I have seen for patient care [whose] beauty is its simplicity.” Now we embark with our clients on the implementation phase, including action research with four pairs of NHS and local authority commissioners as they put the commissioning tool into practice. This should produce a rich learning stream about how statutory organisations work together, with 3rd sector bodies and most importantly with patients and carers to improve quality – Lord Darzi are you listening? Belated Happy Birthday NHS.

Colin Adamson
Partner
The Moore Adamson Craig Partnership

Patient Feedback – the Canadian way

The Lakeridge Health hospital at Oshawa, Ontario sends out a questionnaire and covering letter to those who have been discharged after a stay in hospital. For UK users of similar questionnaires, there will be few surprises both in the ground covered and the survey approach especially when you see that the company running the exercise is NRC Picker Canada.

What impressed me the most was the quality of the covering letter which addresses questions that many managers prefer to avoid or gloss over when doing these sorts of surveys. For example, the letter confronts head on one of the main reasons why people do not respond. They are scared that if they say bad things about their stay in hospital, bad things will happen when they are back in. “Please feel free to express your opinions frankly and be assured that your future care at the hospital will not be negatively impacted.” They go on to offer more reassurance by saying that no one from the hospital will contact you about your comments – not least because they do not get any personal information from the survey company. A name and telephone number is given if people do want to talk to someone “directly regarding your care experience”.

The other nettle to be grasped is sending questionnaires out if the person has died. The way Lakeridge Health addresses the issues is first to say that they try their best not to send out questionnaires “to families of patients who have passed away”. They go on to write “If a grieving family member receives this letter, please accept our heartfelt condolences and our sincere apology”. However if people do have things they would like to get off their chest, then “If you would like to respond on behalf of your loved one, you may certainly do so, but it is not our intention to add pain to your sorrow and grief”. This is common and good practice – when we do complainant questionnaires, it is very important to avoid sending them to the families of the dead.

The fact remains that hearing from families and carers about what happened in these distressing circumstances, is actually very useful. Information can offer some very useful insights into how processes and policies in this highly sensitive area can be improved just as in any other service context. We were reminded of this when we did a group discussion amongst people who had cared for someone who had recently died where the insights offered gave us a very valuable extra dimension to the patient experiences we were collecting. However a self-completion questionnaire received out of the blue by the grieving family is a disastrous way to go about this. All of you who have had to manage a death in the family will remember how many forms had to be filled in to satisfy everyone from the Registrar of Births and Deaths to the Inland Revenue and how the heart sank with each post bringing more forms. A questionnaire enquiring amongst other things about the quality of hospital food is an unwanted extra chore.

The experience merits a more personal approach and one where specialist interviewers will help make sure that the people interviewed are treated with compassion and respect.

The topic is very relevant in a UK context given the introduction of PROMS – Patient Reported Outcome Measures – into the NHS shortly as part of the post-Darzi drive for quality in everything the NHS does. The most important measures of quality are measures of the outcomes of care, and that can include a “good death” as assessed by relatives. The best assessment of outcomes will usually be provided by the patient. Florence Nightingale had these too. All her patients on leaving hospital were recorded “relieved, unrelieved, dead”. It has taken us a long time to do as well as Miss Nightingale in many things, but from April 2009 the NHS will have pilot schemes for rather more sophisticated patient outcome measures for hip and knee replacement, inguinal hernia repair and varicose veins.

Let us hope our questionnaires on pain, mobility, depression and anxiety, and the ability to undertake the normal activities of daily life after the hospital experience are at least as tactful as the letter from the hospital in Oshawa.

Canada Post

The current Canadian obsessions are the price of gas for their cars – now going down with every change monitored cent by cent – and detached human parts. The running (floating) story is feet being washed up on various shores thanks to the buoyancy of trainers but this has been pushed aside in the national media by the horrifying reports on the dangers of decapitation by fellow travellers on the bus.

There was an immediate rush of stories about the civic duty of the fellow passengers on the bus. Should they have intervened? Or was their primary duty to themselves and to get out of there? I have no doubt as to what my reaction would have been. I have not been on a Greyhound bus since the time in the 60’s when the company offered what was surely the best travel bargain ever – $99 for 99 days of unlimited travel in the USA (and perhaps Canada as well?). There were indeed some dodgy moments but I never felt in danger of imminent attack by a crazed fellow passenger and believe me there were some very crazy fellow passengers to say nothing of those who appeared to live in the downtown bus stations.

If you wanted to influence the way the media covered the story, then I can tell you now one way of doing so – apply to join the Toronto Star’s Community Editorial Board. Launched in 2000, the Board has been ” a vital part” of the newspaper’s efforts to “understand and reach the many communities in the GTA”. (Greater Toronto Area). I was interested to see them making an effort not to get the usual suspects – “we are not looking for official spokespeople for communities but for ordinary people who share a passion fo the city and its residents”. How familiar that goal sounds to those of us looking for user and public representatives – the hunt for that elusive being: the ‘ordinary’ but passionate person.

The examples of previous members offered by the paper sound anything but ordinary but does seem to hit all the bases for diversity of input – the immigrant from Somalia who runs his own consulting firm or the Ojibway student who used to run a small business. (The Ojibwa is the largest group of native North Americans-First Nations north of Mexico- Wikipedia). Other members were a Sikh woman and environmental activist and the chemist of Pakistani origin.

The group discussed coverage of terrorists, foreign disputes and minority groups in the GTA as well as being able to sit in on meetings editors held with major political figures and write guest columns on topics of their choice.

If you want to apply, you are asked to get in touch with a Mr Ian Urquhart, the editorial page director, a member I am confident in saying of what must be Canada’s dominant anglophone (after a fashion) immigrant tribe – the clue is in the name. I wonder if Canada will be seeing Alex Salmond MSP over soon to announce that he favours ‘Le Canada Libre’ (except presumably Quebec) united with the auld country. Where Charles de Gaulle led, can he be far behind?

We urge Mr Urquhart to give his group a higher profile. A search on the newspaper’s own site showed 0 results for ‘community editorial board’. It would be great if Canada’s highest circulation newspaper took reader and community involvement offered some evidence that it takes community engagement seriously.

In the meantime back at home, the Wandsworth LINk gathers momentum after the Interim Executive was formed with one meeting already held and another planned for the end of August. More on that in future postings

Colin Adamson
Your Canadian correspondent.