A Service to the PPI Community

The PPI community was well served by the issues of PPI Monitor. Important issues were raised and discussed by practitioners and a wealth of case histories showed what worked and what did not. When Bearhunt the publishers took the decision to discontinue the magazine because not enough of us signed up as subscribers, the M-A-C Partners wanted to make this valuable archive available as a resource as PPI is resurrected and relaunched in its post-CPPIH form.

In this section of our website, you can find and read a number of issues in Adobe pdf. This is searchable with our search control (below) and Google Desktop and to help we have reproduced the contents table as a quick guide to each issue, further expanded by a M-A-C Commentary which we are writing as we get round to reading and re-reading each issue ourselves.

Fascinating stuff and if you want to avoid re-inventing the wheel, dip in and refresh and revive your PPI interests or learn for the first time what a wealth of energy and heart and skill went into bringing the Patient and Public involvement alive.

March 2004, Issue 2
April 2004, Issue 3
May 2004, Issue 4
June 2004, Issue 5
July 2004, Issue 6
September 2004, Issue 7
October 2004, Issue 8
November 2004, Issue 9
January 2005, Issue 10
February 2005, Issue 11
March 2005, Issue 12
April 2005, Issue 13
May 2005, Issue 14
June 2005, Issue 15
July 2005, Issue 16
September 2005, Issue 17
October 2005, Issue 18
January 2006, Issue 20
February 2006, Issue 21
March/April 2006, Special Edition

March 2004 Issue 2

INSIDE THIS ISSUE

The Guide to the Guides. PPI Monitor takes a look at the vast number of PPI Toolkits out there and points you in the direction of the best.
Lessons from Mental Health. Much of the current best practice in Involvement can be found in Mental Health Services.
Local Authority Scrutiny of the NHS and how it fits into PPI.
Patient Forums: Top tips on getting started.
Case Studies: Two Trusts discuss how they achieved a rating 111 in PPI.
10 Great Myths about PPI

M-A-C liked... the emphasis of this 20 page issue on evaluation and research. There is a look at the PPI Guides, how the Healthcare Commission evaluates PPI complete with 2 Case Studies.

The M-A-C article 'Patients Forums: Your Starter for 10' was based on research done on a small sample of Forums and the Understanding Patients research is described by Ben Page of MORI.

Trevor Gay writes about the 10 Great Myths about PPI. David Crepaz-King, the Chief Executive of Mental Health Media writes on PPI involvement in mental health services which as he points out dates back to the 17th century citing the "Petition of the Poor Distracted People in the House of Bedlam" as an early example.
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April 2004 Issue 3

INSIDE THIS ISSUE

Identify what type and level of Involvement is appropriate for different issues with a unique "Policy into Practice tool" for Public Involvement.
Dr Jane Martin, Executive Director, at The Centre for Public Scrutiny explains how the new power of local authority overview and scrutiny committees to scrutinise health should be regarded as a constructive opportunity for local authorities and health service providers to work together to improve the health of local people
Case Studies. NHS Direct, East Somerset NHS Trust and the Shaw Trust, a Forum Support Organisation share their practice and learning in Patient and Public Involvement.
Jargon, in-house language, professional speak? Trevor Gay argues for common sense and reality about the way we speak to our customers: patients, carers and the public.
Jill Brunt, Head of the new Patient, Public and Community Involvement Unit at the NHSU outlines their strategy for PPI.
The Operating Theatre sets out innovative and successful methods to engage patients and the public into health related topics and issues using drama and the power of stories and fiction.

M-A-C liked... the article by Ruth Turner of Vision 21 "Promoting Active Citizenship" recruiting 30 people for the Citizen' Council of NICE - the National Institute for Clinical Excellence.

Another innovative approach was described in an article about the "Operating Theatre" based in Newcastle University - a group using stories, dramas and writing to assist learning on health matters.
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April 2004 Issue 4

INSIDE THIS ISSUE

PPI Tools. See how Photography can help to elicit the views of the more marginalised members of your local community.
Learn how using diaries can be a useful tool for involving patients and the public in health issues.
Case Studies. CPPIH Regional Manager for the North East, Sally Young highlights the practical achievements so far of Patients Forums in this area.
PPI Forum Co-ordinator, Tim Hatton presents a wealth of ideas for others as he presents the story of the first six months working for an FSO.
This months Cup of Coffee Interview takes a close look at the work of Pals at Oxleas NHS Trust.Networks. PPI Monitor starts a short series of features on the help and support available from Networks for all those working in PPI. This month we begin with Engaging Communities Learning Network (ECLN).
Window on Wales. PPI Monitor takes a look at the different approach to PPI in Wales.

M-A-C liked... Stephen Young's article "Managing without Shoe' on the personal journey he made from developing services for people to developing services with people as part of a project setting up "The Creative Living Centre".

Another personal story came from Tim Hatton who came from sales and marketing in business to run a FSO and tells what sounds like a story of achievement and success in South Nottinghamshire with PPI Forums in and around Nottingham.

Finally Bob Sang urges us all to clarify our key roles in the three overlapping areas of Improving Services, Improving Health and Improving Accountability. It was and is one of the most interesting aspects of PPI seeing how theory and practice develop together.
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June 2004 Issue 5

INSIDE THIS ISSUE

Listening is key to successful Involvement. Penny Lancaster presents a participatory approach on how and why we should listen
to what young children are trying to say.
Jane Cooper from the Long-Term Medical Conditions Alliance (LMCA) discusses how chronic disease represents a challenge to the health care system and how partnerships at all levels are the key to successful self management Research Findings.
Keep up to date with the latest views on Patient and Public Involvement through an in-depth NHS Confederation study.
Ailsa Harrison from Wycombe Primary Care Trust talks about breaking the cycle of cyniscm and encouraging people to get involved again by telling people about how they have made a difference.
The importance of involvement from the outset in the redesign of secondary health care services in Greater Manchester is highlighted
by Cath Broderick.
And much more including Case studies, PPI Tools, Network Updates, In-depth Interviews and leading opinion.

M-A-C liked... Ailsa Harrison's tale of rebellion around the agenda item "date of next meeting" - all present refused to attend another meeting because they did not believe anything had happened as a result of what was said at previous consultative encounters.

Feedback is vital. The issue has plenty of examples of lessons learnt (Cath Broderick PPI Co-ordinator in the NW) and take a look at Maureen Dale's Principles on p11. A report put together by People Science and Policy Ltd for the UK Research Council in 2002 is still available on their site.
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July 2004 Issue 6

INSIDE THIS ISSUE

Identify what type and level of Involvement is appropriate for different issues with a unique "Policy into Practice tool" for Public Involvement.
Dr Jane Martin, Executive Director, at The Centre for Public Scrutiny explains how the new power of local authority overview and scrutiny committees to scrutinise health should be regarded as a constructive opportunity for local authorities and health service providers to work together to improve the health of local people
Case Studies. NHS Direct, East Somerset NHS Trust and the Shaw Trust, a Forum Support Organisation share their practice and learning in Patient and Public Involvement.
Jargon, in-house language, professional speak? Trevor Gay argues for common sense and reality about the way we speak to our customers: patients, carers and the public.
Jill Brunt, Head of the new Patient, Public and Community Involvement Unit at the NHSU outlines their strategy for PPI.
The Operating Theatre sets out innovative and successful methods to engage patients and the public into health related topics and issues using drama and the power of stories and fiction.

MAC liked... the reminder in the editorial that 5000 people were by now involved in the PPI network. Christine Farrell looked at the evidence of PPI effectiveness based on 12 different research studies.

Brenda McCrory of the Queen Victoria Hospital in East Grinstead went back in time to 1940 and the pioneering patient and community involvement policies of Sir Archibald McIndoe the plastic surgeon, the better to treat the badly burned and disfigured "Guinea Pigs" - RAF airmen.

Involvement in clinical practice was the theme of Emma Challen' piece on involving lay people in clinical issues in Sheffield South West PCT.
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September 2004 Issue 7

INSIDE THIS ISSUE

Sex and the City may be the TV programme that everybody is talking about, but getting people
to talk about their experiences of sexual health services is not quite so easy. Caroline Davey offers some tips.
We need to value the opinions of our service users, not just by saying that we"ll listen but also by enabling them. Arrianna Walker shares some ideas for getting and keeping people involved.
Barnsley PCT has developed its own toolkit, in an attempt to "nail down" PPI. Val Cole explains how it emerged and what it does.
Viki Cooke and Graeme Trayner report on their new research which identifies trusted people within communities as The New Persuaders. Here's how to recruit and engage these "protagonists".
Many organisations engaged in PPI are set up for people; less common are organisations of people. Fran Branfield introduces the work of Shaping Our Lives: the national user network.
Research and development are very influential in health and social care, but have been dominated by professionals and academics. Helen Hayes introduces the national focus for public involvement in R&D.
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October 2004 Issue 8

INSIDE THIS ISSUE

Drawing, painting and talking are just some of the ways to engage children in service redesign and mobile phone texting is important. Helen Hand tells why.
The PPI Monitor Annual Conference is coming up.
Latin America provides the inspiration for Bradford's new International Centre for Participation Studies. Heather Blakey explains.
Keep it simple, they say. Clara Mackay shows how this rule works well for one PPI forum A PPI programme which won an award at NHS Live is showing how PPI can really change lives. Julie Backley explains.
Limited interest and underinvestment are holding back the potential of knowledge sharing systems for improving health. Joe Cullen helps you get to grips with ehealth
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April 2004 Issue 9

INSIDE THIS ISSUE

Who's in Control Anyway? Stuart Copeland argues that PPI Forums can maximise their impact by organising themselves
NHS Cancer Networks. Health services are increasingly being delivered through networks and partnerships and PPI is having to respond. John Sitzia and colleagues show how PPI practitioners can learn from the experiences of NHS cancer networks
New Concepts in Community Care. Local communities can respond to their own community care needs. Deborah Quilgars explains how it is happening in Hull.
The Database of Individual Patients. Experience offers a wealth of insight. Andrew Herxheimer shows how lay people and health professionals can learn from a systematic collection of illness experiences
Artistic Pathways. One Manchester project shows that creativity is an effective means for engaging people and communities
Telling Tales. Throughout history people have memorised and relayed their experiences through stories. Find out how to capture narratives that can be put to good use
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January 2005 Issue 10

INSIDE THIS ISSUE

On an electoral roll With foundation trusts now established, it is likely that others will follow. Establishing the membership through an electorate is an important foundation for a PPI ethos. Melanie Adams explains.
Engaging patients as teachers says Noreen Cushen, proves that patient' issues differ from those of professionals, and can help to prioritise patient-centred actions for improvements in services
Court rooms and speed dating Local people complain about being asked to engage in things over and over again. As Debbie Epstein explains, in Camden, they are doing something about it
Keeping it real CPPIH Commissioner Ian Hayes tells why PPI must not stop at the appointment of paid professionals
Effectively speaking The experience of her first pregnancy led Gill Gyte to take an interest in finding evidence on effectiveness. Here she explains the valuable work of the Cochrane Collaborative.
Literally on the margins Literacy not only affects people's ability to participate, but also affects their access to health care and their level of health - but by how much? Saranjit Sihota has been finding out, and discovering that some people may get more marginalised.
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February 2005 Issue 11

INSIDE THIS ISSUE

Mr Motivator - Just what is it that motivates people to get involved in health care issues. This is a big question and it's one that Johnston Birchall and Richard Simmons of Stirling University have been looking at.
Little acorns - The big focus of PPI is on urban issues, but rural health issues are important too. Herefordshire PCT won the NHS Alliance Acorn Award for PPI. Euan McPherson explains why.
Gobbledygook is everywhere, even though the NHS has tried hard to get rid of it. John Lister of the Plain English Campaign gives his top tips for written communication with patients and the public
Licence to innovate: Innovation in the NHS is not just about science and technology. Laura James shows how you can capitalise on PPI innovations
On the buses: It is an old chestnut, but transport issues are a big concern for patients and the public. Kath Tierney offers some ways to deal with these issues effectively
Welsh Rarebit: Wales is not behind the door when it comes to PPI. Val Doyle and Diane Henderson give insights into Signposts, their practical guide to PPI
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March 2005 Issue 12

INSIDE THIS ISSUE

Take care - A new guide focuses on where most health care exists - self care. Patients and the public can be supported to get more involved says Ayesha Dost
Year of the volunteer - Paul Donohoe explains how volunteering can be a major source on involvement
Physician Heal Thyself - It's not only patients that have long term conditions. Jane Keep shows what employers can do support self management by staff
Sisters are doing it for themselves - In Newcastle local women didn"t have to wait to get "engaged" before making a positive response to health issues. Anne Carlile explains
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April 2004 Issue 13

INSIDE THIS ISSUE

Get stuck in - PPI is as important as ever, but changing again. In a personal view,David Gilbertsays that the case needs to be made more strongly, and then we all need to get stuck in!
Jeux sans Frontières - Making PPI both meaningful and fun is a real challenge. Roger Bobacka introduces a game-based approach to planning with people.
Circle of Fear - Community engagement is one of the three key elements in the five-year programme to deliver race equality in mental health care. Jim Fowles explains the approach to reform inside and outside services.
No White Coats - More and more researchers are addressing everyday practical issues - and engaging patients and the public in their work. Elizabeth Smith outlines experience from the PIN project.
Firm foundations for health - Most people in the PPI world will have heard of community development, but how many of us realise what it might contribute to health? Beth Longstaff reports on recent findings and future plans.
Who cares to listen? - Gypsy and traveller communities often remain "off the radar" of the NHS and PPI. Jo Stott describes a whole system approach to working with the communities in Hull.
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April 2004 Issue 14

INSIDE THIS ISSUE

Engaging People, Making an Impact - Health Scrutiny is learning about how to affect local policy for health and well-being, as Tim Gilling explains in our regular slot from the Centre for Public Scrutiny.
Confidence Trick - Confidence is critical for people to get active and get involved, especially where they may otherwise be excluded. Lynne Moore describes effective approaches in Suffolk.
Back to the Future - The future of health services in Shropshire and Staffordshire is being developed by a team of forward-thinking members of the public as part of a new, innovative scheme to encourage patient and public involvement. Jane Routledge reports.
Cry Freedom - There is uncertainty around the future role of PPI forums. There is a risk of ending with a narrow focus, rather than allowing local communities to decide what is important, argues regular columnist Ian Hayes.
Usual Suspects or Community Leaders? - Heather Blakey and Peter Richardson ask "What's the difference?"
Into the Bloodstream - Involvement cannot be left to people at senior levels, or just PPI specialists. Verna Fee demystifies PPI in Derwentside, County Durham
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June 2005 Issue 15

INSIDE THIS ISSUE

A breeze in the Hot Sun - Users, carers and advocates can become leaders and partners in health care. Karen Picking tells how
Involvement to engagement - just how do you achieve the shift? Bob Sang and Jane Keep have some ideas
Real choice - Karen Newbigging suggests that direct payments is the way forward for choice in mental health
Design for the 21st Century - Andy Dearden reports on how technology might aid public engagement
Drug deal - Allan Johnstone says that PPI must link with Drug Action Teams to get the views of drug misusers
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July 2005 Issue 16

INSIDE THIS ISSUE

All pull together - Lay people may have different roles in scrutinising health services, but working together is becoming an increasingly attractive proposition - and reality - as Tim Gilling reports from the Centre for Public Scrutiny's annual conference.
Flexibility, Flexibility, Flexibility - Involving black and minority ethnic and other excluded groups remains a challenge for PPI. Ian Flack describes one approach which was used with PPI forums in London and Essex.
The Cancer Journey - Patient and public involvement often raises people's desire to be treated as whole people, not as patients. Michail Sanidas reports on an approach to the holistic needs of people living with cancer that one participant described as "the most inclusive event in my experience."
Power to the People? - Engaging communities is a process of negotiation in which risk, and the styles of professionals, are critical, finds Mike Shiner.
Stories that change your life - Communities can challenge health inequalities, as a new book of stories shows. Bec Hanley and colleagues report.
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September 2005 Issue 17

INSIDE THIS ISSUE

Brighton Rocks: Jane Bolding talks about Brighton & Hove's Expert Patient programme - a finalist in this years Health & Social Care Awards
A Month is a Long Time in PPI: Regular columnist Ian Hayes tries to keep track of the politics of PPI
Drugs Futures 2025: Martin Ince explains how to engage the public in issues about the future
Art for Arts Sake? : Mike White on arts improving health
Trumpet Voluntary: PPI is usually about the NHS. Kristina Staley and Bec Hanley find out what the voluntary sector are up to
A Fluid Response: Melanie Lee describes how to tackle inequalities of access to cancer services for BME communities
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October 2005 Issue 18

INSIDE THIS ISSUE

Market Makers - In an era of markets, a plurality of providers and patient choice, just where does PPI fit. Gary Fereday addresses the question.
An Independent Air - Sarah Gillinson looks at Centres for Independent Living and outlines the learning for user involvement in public services
Folk.us - Rachel Purtell on people in research
Health Scrutiny - Tim Gilling reports from the Health Scrutiny conference
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January 2006 Issue 20

INSIDE THIS ISSUE

Westminster Fly-in - Marie Watton on how patient advocates are infl uencing services and campaigns for people with breast cancer
Is PI just PC? - Anna-Maria Saeb- Parsy asks if patient information is just the next stage in political correctness or a cultural revolution
The "F" Word - How do ordinary people find out what a healthy diet is? And how up to date can their information be? Martin Ince has been finding out
The 1% Solution - Paul Skidmore looks forward to the forthcoming Demos report on public participation
Social Entrepreneurs - who are these people and how can they help to
engage people in primary care? Jane South assesses the opportunity
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February 2006 Issue 21

INSIDE THIS ISSUE

Mystery Patient Project - The idea of mystery shoppers has long been a way for retailers to check out their customers services. Jean Mead outlines how mystery patients are becoming a part of the PPI landscape in North Wales
The True Costs of Public Participation - Is it possible to assess costs and benefits of different participatory approaches? Edward Andersson has been finding out.
NEDs and PPI: what can we learn? - What can PPI learn from nonexecutive directors? Tim Gilling has been listening to an expert.
Welcome to the L2Ozone! - Marketing is a key skill, but one often overlooked in engaging communities in health. Jackie Rankin offers a successful example from Merseyside.
A Good Choice for Mental Health - Choice could have a greater effect in mental health services than in most other fields, yet it has been little discussed. Jennifer Rankin outlines an approach using personal recovery budgets that offers citizens real control and responsiveness.
A Tool for Leaders - Fabienne Jacquet explains how Diabetes UK's latest toolkit can help empower people within black and minority ethnic communities.
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March / April 2006, Special Edition

INSIDE THIS ISSUE

Bye Bye PPI: This is the final edition of PPI Monitor. See this months editorial for more details
Travellers Rest: Kath Tierney explains how a PCT has started to raise the travel information standard.
Now I Feel Tall: published by the Department of Health, encourages all NHS organisations to take a close look at how they deliver their service and to ask patients if their emotional needs are being met as well as their physical ones. Jenny de Ville explains.
Rural Proofng: Alice Earp and Lesley Jones introduce a new toolkit for primary care organisations in rural areas, including how PPI can be most effectively done in rural settings.
Putting Health in Local Hands: New governance arrangements are a cornerstone of NHS foundation trusts, including direct involvement of patients and the public. Lisa Hinton and Richard Lewis review the early experiences of Homerton Hospital NHS Foundation Trust.
Volunteers Across the NHS: The NHS has not always valued or made best use of volunteers. Sheila Hawkins introduces new guidelines to encourage greater consistency in how volunteers are managed.
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