Online resources for patient & public involvement

Everything on the full list is valuable, but we think "M-A-C's Top 5" below is the best place to start if you were wondering how to find your bearings in patient and public involvement.

Trevor Gay's Ten Great Myths of Patient and Public Involvement
www.natpact.nhs.uk/uploads/tengreatmyths.pdf
Signposts 1 and 2
Guides to PPI written for Wales in 2001 and 2003, but the approach is applicable everywhere
Signposts 1 and Signposts 2
"Now I Feel Tall" - what a Patient Led NHS Feels Like
Department of Health (December 2005)
www.dh.gov.uk/..

See M-A-C's blog for further commentary on this guide :Patient feelings - Key to service satisfaction in the NHS (posted 6/3/2006)
A Practical Guide for Involving the Public in Health and Social Services
(July 2003) practical lessons from Leicester City Health Action Zone
www.dh.gov.uk/assetRoot/04/06/14/55/04061455.pdf
And for current news and views on aspects of user involvement, complaints and governance keep an eye on M-A-C's very own blog Notes from the field (began publishing November 2004). See our reflections over four years on What works in Patient and Public Involvement (posted 1/12/2005)
www.publicinvolvement.org.uk

PPI Critiques

In addition to Trevor Gay's Ten Myths and the M-A-C blog, we also found two other good critiques:

Hehir, Brid. Power to the Patients?
A personal and provocative view on the NHS "patient centred reforms" by the PPI Lead for a London PCT (July 2004)
www.spiked-online.com/Printable/0000000CA5CD.htm
Bowler, Stephen. Who wants to be an expert patient?
A provocative essay probing the ethics of "therapeutic policy making" (March 2005)
www.spiked-online.com/Articles/0000000CA973.htm

Last updated: December 2006